最近，我越来越没有时间与打电话给我的其他朗科维德患者交谈，原因很简单，因为电话太多了。因此，我的想法是在我的新博客上分享我在 20 分钟通话中无法提供的信息。
以下是我最常被问到的问题：
1.)您是否已从 Long Covid 完全康复？
我又开始了我最喜欢的运动--风筝冲浪和滑雪，每天工作 12 小时以上也不成问题：是的，我已经完全康复了。
However, the glasses and the blood pressure pill in the morning are probably things that will stay with me for the rest of my life – but I am not complaining at all – it does not bother me and just 2-3 years ago I was bedridden in a dark and silent room.
2.)您个人曾接受过哪些治疗来帮助康复，需要多长时间？
I did Combination Therapy. I had 4+3 Help Apheresis sessions, IV treatments and medication protocols. It took me about 6 months from the day I started to the day I was fully recovered. However, my self-assessment was a bit off – if you asked me directly after my 4th Help Apheresis treatment how I felt, I would say I was completely healthy again. I was not – I had just forgotten what it felt like to be completely healthy. My mother, who developed Long Covid/Post Vac Syndrome a year later, was the opposite – she always reported feeling worse than her increased activity level and reduced heart rate indicated. It was only a year after treatment (she was also on Combination Therapy with Help Apheresis, but her symptoms and therefore the medication protocols were different) that she realised she was back to full capacity. I was her full-time caregiver for a month, and after my own experience, it gave me an additional and very valuable perspective.
3.)您是否在康复后再次感染过 Covid？
Yes, I have had two reinfections so far. When travelling to see suppliers, going to conferences etc. it is quite difficult not to get reinfected despite all the precautions.
As I had my Early Treatment package (consisting of nasal spray, mouthwash, antivirals, anticoagulants and supplements) with me each time, I managed not to revert to Long Covid. The first time I was afraid that might happen, but as the 12 days I was in quarantine were literally symptom-free and the tests came back negative on day 8, I was a bit more relaxed the second time. The second time, due to a different Covid variant, the symptoms may have started a few days after I was infected (and tests did only get positive that time) – so I felt some mild symptoms this time – but again, no worsening/regression.
4.)再次感染后，您是否需要接受更多的帮助性血液透析治疗？
No, I did not, I felt perfectly well. However, I have had 3 more Help Apheresis treatments in the last year out of personal choice. One after the first reinfection, another after the second reinfection and a third before an elbow operation where I was very close to sepsis due to a strep infection I got from cutting my elbow while working in the garden.
5.)如果您处于我的境况（目前正遭受长颈鹿/真空后综合症的折磨），您会给我什么建议？
首先，无论如何治疗，都要尽早。不幸的是，Long Covid 和其他慢性疾病都会导致症状慢性化。
Secondly, if you can afford it, go for Combination Therapy with Help Apheresis. If not, go for Combination Therapy without it (I don’t think anticoagulation or fibrinolytic treatments can replace a sophisticated and highly selective treatment like Help Apheresis, but they definitely help too).
第三，尽可能注重恢复。饮食、补水、睡眠、节奏和环境都非常重要。
Fourthly, before you start any treatment (and also during), record yourself on video regularly for 2-3 minutes, summarising how you feel and what symptoms you are experiencing at what level – maybe even write a small symptom diary. Why do this? We long term sufferers do not seem to be very good at self-evaluation and it is sometimes very difficult to judge which parts of a treatment have been beneficial – especially as it can take many months for recovery to take place and improvements are often so gradual that they are barely noticeable. Brain fog, anxiety, sleeplessness and fatigue, and many other symptoms we experience, are not really helpful in making a good self-assessment. And by the way – this goes both ways – we sometimes overestimate or underestimate how good/bad we are.
